This is the continued story of the girl with the helmet, she doesn't use it much anymore for she can no longer walk.....drawing is very different for me than it was but I must keep trying. Reading has slowed down much as well. I have been diagnosed as having epilepsy, autoimmune disease, and distonia among other things.
Tuesday, January 17, 2017
When I Am Silent
When I am silent this does not mean I have nothing to say, it just means that sometimes it is really difficult to say the words in me or that sometimes with all my meds it feels like my head is full of sealing wax and duct tape and a buch of brightly colored yarn and by the time all these things start to unravel from me it is time to be drugged again. What am I to say??? I say nothing for everything is stuck in this strange reality. and when I have come away from being a drugged I feel myself falling backwards into seizureland and I must admit this strange feeling that I shall not come back is rather annoying. I don't want to go away right now.
Sunday, January 15, 2017
How Mommy Found Me A Compassionate Doctor Who Would Hear My Cry...
Neruologists can be a very frightening bunch and even though some just said I was too much for them to take on, it was not helpful and things only got worse....but then it actually finally got to the point that some mean and rude doctors knew that I wasn't a fake...I have been called that before.
I believe that they just didn't know how to treat a case as mine so they probably decided to just let things go even if taking no action was worse.
So where did my mother find this most compassionate person who works hard and cares for his patients?? The good old phone book.
This is not to say that I have not found great men who treated me kindly at hospital and a Muslim man granted me great kindness and mercy before, I cannot judge a man because of religion for we all are sinners and all have bad days... I just wanted the grown up world to be the way my mind thought it would be and it leaves me disturbed... But that's how sin is.
I still have much to learn and I am not saying that I thought Christians were better than anyone else is in their own human ways. I just guess I truly am stupid to of ever thought people were kinder to each other.
I believe that they just didn't know how to treat a case as mine so they probably decided to just let things go even if taking no action was worse.
So where did my mother find this most compassionate person who works hard and cares for his patients?? The good old phone book.
This is not to say that I have not found great men who treated me kindly at hospital and a Muslim man granted me great kindness and mercy before, I cannot judge a man because of religion for we all are sinners and all have bad days... I just wanted the grown up world to be the way my mind thought it would be and it leaves me disturbed... But that's how sin is.
I still have much to learn and I am not saying that I thought Christians were better than anyone else is in their own human ways. I just guess I truly am stupid to of ever thought people were kinder to each other.
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